I know I’m late posting this update, but I figured after the week I’ve had with pain, doctor’s appointments etc. that I deserved a day of total laziness.
For the record, the endometriosis specialist was awesome. She suggested another laparoscopy (of course) but gave me more options for management than my OBGYN. My regular OBGYN gave me Lupron indefinitely and said there was nothing more he could do to help me. The specialist said that post- surgery if my pain was better she could take me off Lupron and put in an IUD instead. If my pain is still bad, she said she’d give my body a short break and prescribe estrogen replacement for a while, then she could put me back on Lupron. She said that we’d avoid a laparotomy for the diaphragmatic endometriosis for now, and that she would try to take care of it laparoscopically first. Meanwhile, she’s sending me for a bone density scan since I’ve been on Lupron for over a year – she said my regular OBGYN should have ordered one ages ago, and that he should NOT be prescribing me Lupron indefinitely with no breaks. If the bone density scan comes back bad then she said she would take me off Lupron right away and do the surgery sooner. If the bone density scan comes back normal, I can wait until the beginning of summer to have surgery. She prescribed me Naprosyn every 6 hours, and she said if I was still in debilitating pain after that, that she would decide to do the surgery sooner as well.
She also says she has a pretty good suspicion that I have interstitial cystitis and that IC is what is causing a lot of my pelvic and back pain at this point. For those of you unfamiliar with IC, it’s an immune system dysfunction that wears away at the protective lining of your bladder, causing a lot of pelvic and back pain that is similar to endometriosis pain. She said it’s a common problem with endo sufferers (about 30%) so when she does my lap she wants to do a cystoscopy as well to check.
So, my loyal readers – have any of you had an IUD put in as a way to control your endometriosis? Did it help?